Medical College to host presentation on rare disease

Critically acclaimed film and stage actor Michael York will share the personal story of his battle with amyloidosis at a special presentation at the Froedtert & the Medical College of Wisconsin Cancer Center on Tuesday at 10:30 a.m.

The event, “Michael York launches RENEWAL (Research Exploring New Amyloidosis Learning),” welcomes patients, families and interested parties to learn more about amyloidosis. This rare disease occurs when abnormal proteins called amyloid build up in the body, resulting in fatigue, heart failure, liver and kidney damage.

“The disease, while relatively rare, has devastating effects on patients, and there is no ‘cure,’ which means we must continue to advance our knowledge about amyloidosis. Research offers hope for identifying new treatments and, hopefully, the ability someday to cure it,” said Dr. Parameswaran Hari, the Armand Quick–William Stapp Professor of Hematology at MCW.

In addition to the reading by York, the event will include the presentation of an initial gift of $10,000 for amyloidosis research from the Camille A. Lonstorf Charitable Trust. Milwaukee-born author and musician Paul McComas will also perform an inspirational song for guests.  

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